About

Melissa J. Hogan is a licensed attorney and co-author of the book, “Afraid of the Doctor: Every Parent’s Guide to Preventing and Managing Medical Trauma” (www.afraidofthedoctor.com). She received her Juris Doctor with an emphasis in health law from the University of Pittsburgh and went on to clerk on the U.S. Court of Appeals for the Sixth Circuit, practice as a corporate/healthcare attorney, and teach legal writing and health care regulatory law. She founded and for many years led Project Alive, a research and advocacy foundation for Hunter syndrome, a rare genetic disease that affects her youngest son. She has appeared on The Doctors, Inside the NBA, and on numerous broadcasts raising awareness about rare diseases generally and Hunter syndrome in particular.

In addition to her book, Melissa writes and speaks in the areas of trauma and abuse, advocacy, and rare disease, has been published in peer-reviewed medical journals, and also serves as a Patient Representative to the U.S. Food and Drug Administration and on the Family Advisory Council for Vanderbilt Children’s Hospital.

Melissa is currently working on her next book, a memoir, in addition to collections of poetry and essays.

Other Works